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Hip Issues with Back Arching

My six-year old daughter with CdLS is exhibiting strange new behaviors. She is arching her back when she is angry. When she does this, her hip seems to pop and make a clicking noise. It’s as if she is double jointed. Is this common to CdLS? Is it something that needs to be addressed? I have read the literature and it does not sound like a dislocation or Legg-Clave-Perthes disease, because she is mobile.

This is not very common in CdLS and may represent an unstable hip. It would be wise for her to see a pediatric orthopedic surgeon to follow-up on this.

Some children with gastroesophogeal reflux arch their back because of abdominal pain. I would double check that she has not developed (worsening) GERD.

TR/ TK 7-13-10



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