Our seven-year-old son's occupational therapist would like him to have botox injections in his hamstrings and possibly upper back. I need to know if that's been successful for any CdLS kids.
I have not heard of anyone using botox for CdLS, probably because the contractures (bent, non-moving joints) are from tight collagen and not so much from muscle spasticity. Botox weakens spastic muscles for awhile. I doubt if botox would help, but I doubt if it would cause any new problem. I do know that it is very expensive and may not be covered by insurance.
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