Recurrence (in people with CdLS)
What are the chances of my daughter with CdLS reproducing a child with CdLS?
Many females with CdLS appear to be fertile and males may be as well. We have known of adults who are fairly mildly affected having children who seem to have CdLS and other children who don't. It is likely that the risk would be 50%. Whether or not she would be interested in having relationships and children will depend on her level of development and maturity as she reaches adulthood. Once she gets her menstrual period you will know she could get pregnant (and many females with CdLS can be protected against pregnancy by various forms of birth control).
Legal Disclaimer: Please take note that the CdLS Foundation's Ask the Expert service is comprised of volunteer professionals in various areas of focus. Response times may vary and a response is not guaranteed. Answers are not considered a medical, behavioral, or educational consultation. Ask the Expert is not a substitute for the care and attention your child's personal physician, psychologist, educational consultant, or social worker can deliver.